The french family/professional gathering is now over ! A wonderful opportunity of exchanges and meetings only a day like this can allow. The coming of Catalina Betancur was a real chance for everyone. The review she made about the syndrome and studies about it was really enriching. I thank her again for accepting my invitation. And I also thank every family who came, most of the time from far, and allowing this gathering to be a real success. Every intervention has been filmed and I will provide the video to all the french speaking families as soon as possible.

We are now more than 50 french and belgium families (also one lithunian and one maroccan) members of the Foundation. An it keeps on growing !

I also want to remind you that a 20 minutes TV show based on Camille's life, filmed in 2011, is still regularly broadcasted, excellent opportunity to highlight the Phelan-McDermid syndrome.

http://www.youtube.com/watch?v=9NbbKeX6OTk (part 1)

http://www.youtube.com/watch?v=goTBir6etZw (part 2)

http://www.youtube.com/watch?v=9NbbKeX6OTk (partie 1)

http://www.youtube.com/watch?v=goTBir6etZw (partie 2)