le site de Camille et de l'association française du Syndrome Phelan-McDermid

http://lemondedecamille.free.fr/

Associations ( To inquire)

In United States, an association is devoted only for people concerned by 22q13 anomaly. Kathy Phelan, the american researcher working on this disease is part of it.

http://www.22q13.org/

In Canada, Chromosome 22 Central association is for all people concerned by chromosome 22 abnormalities.

http://www.c22c.org/

In England, UNIQUE is an association gathers people concerned by any chromosomal anomalies.

Many informations.

http://www.rarechromo.org/html/home.asp