http://lemondedecamille.free.fr/
"I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it , to imagine how it would feel. It's like this.....
When you're going to have a baby it's like planning a vacation trip-- to
The Coliseum, the Michelangelo, David, the gondolas in
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later the plane lands. The stewardess comes in and says, "Welcome to
"
The important thing is that they haven't taken you to a horrible disgusting place full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you will learn a whole new language. And you will meet a whole new group of people you never would have met.
It's just a different place. It's slower paced than
But everyone you know is busy coming and going from
And the loss of that will never, ever go away, because the loss of that dream is a significant loss.
But if you spend your life mourning the fact that you didn't get to
……Emily Pearl Kingsley (founder of the